Video from the trip

Just a short lil video from the trip.  Nothing was recorded in the hospital as I wanted to respect the privacy of the people in it. 

 

While I was away I got something new

We all know how much POTs sucks.  In March I had an internal heart monitor put in.  I posted about it in a a previous blog entry.  Well it did its thing and showed that my heart stops a few times.  It was then recommended that I try this med that must be given to me via injections.  I hate needles.  I hate meds that require 2 to 3 times a day injections.   I manage to give MYSELF injections but the pain was just too much.  The med was called octreotide.  

Dr. Grubb was consulted right away about the pain and since we had little hope that I meds would help me anyways (I had gastric bypass surgery) we proceeded to go with a pacemaker.  I had said pacemaker put in on Tuesday.  I was sent home yesterday.  Words can’t explain the thoughts going through my mind right now.  I’m just praying that it helps.  I’m praying that someone else reads this blog and it helps them.   

This is now apart of me. http://www.eplabdigest.com/BIOTRONIK-Launches-Evia-Pacemaker-Series

 

I’ll post more later. 

<3 Krista

Where does time fly when you aren’t having fun?

 

Yeah it has been a while since I posted.  I know.  Sadly this past week we lost my husband’s grandmother.   This loss has made me do a lot of thinking and how I really need to at least get an updated will and make decisions on how I want my body to be treated after I’m gone.  Ok sorry to be depressing there for a moment. 

Let’s move onto something better.. I have an appt with Dr. Grubb tomorrow.  Apparently that 12000 dollar piece of equipment they put in has been sending data that he’s not happy with.  So I have an appt to see exactly what that is.  I’ll let you know when I know more.  Sadly due to the fact that my husband has been off for so long we won’t be staying in Toledo too long.   I really need a vacation.  Hey Disney!  Want to send a family of 4 to your resort for free? ;)  Great PR.  Mom has chronic illness.  You’d look like a saint! lol

Speaking of my children.  They are my world.  However,  they are on summer vacation.  It makes me miss “me” time.  Sure call me a bad mom but sometimes mom needs some peace and quiet.   Sadly while I was in the hospital a couple weeks ago I missed them so much that I convinced my doctor to let me go home so I could hear their wildness. 

I’m very proud of Hunter.  Today marks his last baseball game.  He’s stuck through it all season and this is his first season of playing baseball.  I’ve seen a big improvement.  Enough that I know with lots of help he’ll be pretty good in the next year or two.  Plus during his last day of school he was the ONLY kid in 4th grade to receive special certificates for his achievements.  His teacher told me she’s never seen a kid with so many goals and stick to each of them.  He is really gifted.  I wish we had an actual “gifted” school nearby but I’m thankful that Northwest has a gifted class for him. 

And onto my other sweetie.  Ian had a lot of problems reading at the beginning of his year.  This kid now picks up books and reads almost anything.  He reads words I had no clue he could.  He’s also not hard to get to read.  His brother hates to read.  Plus he’s still enjoying cub scouts and just got signed up for tag football.  I think he’ll do great!

So that’s all I’m going to post for now.  I am going to start posting more.  If anything about my craft projects in between the important stuff.  Crafts seriously save my sanity.  :)

Until next time, Krista

Technorati Tags: Children,POTS,Dysautonomia,internal Heart monitor,Columbus Ohio Zoo,death,family

Not your typical artist.

I’m always saying how with having a chronic illness, like POTS, EDS, or any other ones that might exist, just how important it is to have hobbies to help keep your mind off of it. 

I started getting back into scrapbooking.  Only thing that sucks is that I’ve had to buy all brand new stuff because I had pretty much cleared out my stash.  So I’m slowly rebuilding.   I wanted to post some of the things I’ve worked on lately.

Enjoy!

 

 

 

These two pictures are of a tag that I recently made to send to a friend.

 

 

This is a mini scrapbook that I made for my mother on Mother’s day. The first one is just the card that went with it.  :)

I made the red flower!

 

And this last picture is another tag that I made for another friend. 

 

Feel free to leave comments or email me anytime!

Thanks for stopping by,

Kris

It's been a few weeks eh?

I made a video of my weight loss journey. I thought I'd share it with you.

Enjoy,
Kris

Make an on-line slideshow at www.OneTrueMedia.com

Is April really that close to being over?

It seems like just yesterday I was getting my internal heart monitor put in.  Its still there.  I don’t know if it has picked up anything but I do know it sends lots of information based upon the time it takes to transmit.  So we shall see.

This month has been a month of very little energy.  I filed for disability and I still have to get them some paperwork before they can process it.  I do expect to be denied.  I do expect to get a lawyer.  I do expect that I WILL NOT give up until I get it.  I simply can’t work.  I can’t even last an hour out of bed most of the time.  Its hard for me to accept but it is what it is.

About a week ago I did manage to pull myself outside to take some pictures of the sunset.  I hope you enjoy them.

 

Oh yeah I forgot!  I got to deal with my first bought of low blood sugar post gastric by-pass surgery.   I hate this!

 

Technorati Tags: april,pots,heart monitor,energy,reactive hypoglycemia,low blood sugar

I create!

Or so I try anyhow.  I decided to make some silk lollipop flowers last night.  Here is how it turned out:

 

And

Not bad for a first try.

This is how I keep myself from thinking about all the challenges that I have.  It’s my sanity. 

 

So what do YOU do?

Technorati Tags: silk flowers,crafts,scrapbook